top of page

Join the HNRNP-RNDD Registry

Patient focused and led research is critical to understand rare genetics disorders. Sign up for our registry here to be counted in the number of HNRNP-RNDD families we know of and to be contacted for future research projects.


Thank you for submitting to the HNRNP-RNDD Registry!

What is the CRID?
Screen Shot 2023-03-11 at 2.36.02 PM.png
bottom of page