Community Events

Events & Conferences

Bringing together families, researchers, and healthcare providers to share knowledge, build connections, and advance our understanding of HNRNP-related neurodevelopmental disorders.

HNRNP Family Foundation community event

Past Events

A look back at our community gatherings and the connections we've made.

June 28–30, 2026

2026 International HNRNP Gene Family & Research Summit

Sheffield, United Kingdom

Four days of scientific presentations, family networking, and community building that brought together families, researchers, and healthcare providers to share the latest research and support strategies for HNRNP-related neurodevelopmental disorders.

July 27–30, 2025

HNRNP Family Foundation Gene Family Meeting

Ponte Vedra, Florida, USA

Our Gene Family Meeting was hosted by HNRNP Family Foundation and Yellow Brick Road Project. The meeting was an opportunity to connect families with services, HNRNP-RNDD researchers and clinicians, and the HNRNP-RNDD community.

April 26–30, 2025
Partner Event

Yellow Brick Road Project Chantilly, France Meeting

Chantilly, France

Our friends at the Yellow Brick Road Project hosted their second annual France/European HNRNPH2-RNDD meeting in Chantilly, France. Our Research Director, Dr. Maddie Gillentine, attended to meet with other HNRNP families.

September 1, 2024

HNRNP Family Foundation Virtual Science Symposium

Online, Worldwide

This symposium was the first opportunity to gather HNRNP-Related Neurodevelopmental Disorder experts to discuss the research they are conducting.

July 1–3, 2024

HNRNP Family Foundation Conference & Meeting

USA, USA

Our annual Family Conference and Meeting which gathered the HNRNP-Related Neurodevelopmental Disorder community including researchers, clinicians, advocates, and patients.

September 1–3, 2023

HNRNP Family Foundation Family & Scientific Symposium

USA, USA

Our annual Family Conference and Meeting which gathered the HNRNP-Related Neurodevelopmental Disorder community including researchers, clinicians, advocates, and patients.

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